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Planning ahead

With appropriate care and support, people can live well with dementia. There are many services available to support people living with dementia and / or carers. Please visit the support and services map to find out more. You are encouraged to make contact with the services that may be able to support you. It is better to seek help and support as early as possible.

This section will explore the various options available to support both yourself and the person you care for.

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Help to live at home

Most people prefer to stay in their own home, living as independently as possible. However, over time, you may find that caring for your loved one is getting more difficult, and a little extra help is required. If this is the case, there are many options available to you including the purchase of equipment or assistive technology. You may also wish to purchase support from a domiciliary care agency to help with tasks such as personal care, or to support the person you care for while you have a bit of a break. There may be a charge for these services, or you may be eligible for social care support.

For more information please visit: Help to Live at Home.

Personal Budgets

If the person you care for has been assessed as eligible for social care support, you will be offered the opportunity to have a personal budget. This is an upfront sum of money to help you manage your care and support needs. You can receive your personal budget as a direct payment – this is a cash payment, allowing you to directly purchase any services you require. To find out more about personal budgets and direct payments, please visit: Your Care Your Choice.

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Extra Care Housing

Extra care housing is an alternative to traditional residential care offered in Warwickshire. People who live in Extra Care Housing have their own self-contained flats, their own front doors and a legal right to occupy the property. Extra Care Housing is also known as very sheltered housing, assisted living, or simply as ‘housing with care’, with 24-hour care available on site. Extra Care often includes communal areas such as a restaurant or dining room, hairdresser’s or fitness facilities, that can be accessed by the whole community.

For more details please visit: Extra Care Housing in Warwickshire.

Residential Care

Moving your relative to residential care is often one of the most important and difficult decisions you and your family will ever be involved in. You may feel uncertainty or guilt, especially if you are under stress. One of the best ways to minimise this problem is to plan in advance by researching the most suitable homes for your loved one and ensuring that the local authority carries out a full care needs assessment of the person you care for.

For more information on residential care homes in Warwickshire, please visit: Residential Care Homes.

For more advice on how to choose the right residential home for your loved one, information can be found on the NHS Choices website: Choosing the right residential care home.

Help with Finance

Subject to a financial assessment, the person that you support could be entitled to Attendance Allowance and a discount on their Council Tax. You may also be entitled to some benefits (such as a Direct Payment) and tax credits, for example Pension Credit.

A Carers’ Direct Payment is a sum of money provided from the local authority directly to a carer to enable them to have a fulfilling life outside of caring. This can be provided as a one off or ongoing payments. The amount will depend on your assessed needs and the outcomes you wish to achieve.

Please contact Warwickshire County Council social care and support service (Tel: 01926 410410) to see if you, or the person you care for, are eligible to receive any benefits.

 

Lasting Powers of Attorney

It is also important to make sure that Wills and Powers of Attorney are established while the person that you care for is still mentally capable of doing so.

Here are some common terms:

Enduring Power of Attorney (EPA) – such an agreement must have been signed before October 2007 and allows a trusted person to act on behalf of a person no longer capable of managing their own finances;

Lasting Powers of Attorney (LPA) enables you (the attorney) to make decisions, on behalf of the person that you support, about their property and affairs at a time when they are no longer able or lack the mental capacity to take those decisions themselves. It can include the power for you to give, or refuse, consent to medical treatment if this power has been expressly given in the LPA.

It can only be used once it has been registered at the Office of the Public Guardian (OPG).

For more information about Powers of Attorney, please visit the Alzheimer’s Society page on Lasting Powers of Attorney or contact your nearest Citizens Advice Bureau.

 

End of Life Care

Dementia is a progressive and incurable condition; about 60,000 deaths each year are directly attributable to dementia.

Dementia is often associated with other care needs and people with dementia (and their carers) have been shown to have palliative care needs equal to patients with cancer.

Therefore, although it is not easy, it is good to start the conversations about end of life support early enough to ensure the person you look after receives appropriate palliative care when it is needed. You can always revisit things later on.

Remember, you are not alone – help and support is available. Find a local support group, or service, on our interactive map of services.

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