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We need your help developing website content for people living with a dementia diagnosis.

Tags

  • Alzheimers
  • Call to arms
  • Carers
  • Dementia Diagnosis
  • Dementia Portal
  • DementiaChallengers
  • DementiaPortalCW
  • Living Well with Dementia

We are developing additional webpages for the Coventry and Warwickshire Dementia Portal, written especially for people with dementia in the early stages, and we need your help.

We are asking for your ideas about what would be useful content for the webpages. It could contain practical tips and strategies to help people to remain independent, to help cope with stress and low mood, engage with others socially and/or learn new skills.

Please help us to develop the webpages by completing this short questionnaire. Simply click on the link below and you can complete the questions online:

http://www.surveymonkey.com/s/145dementia897

We will use this important information to help us to develop the content and tools offered. All ideas and comments will remain anonymous and confidential.

Thank you for your help. If you have any questions, please contact Dr Emmie Fulton (Project lead) on 024 7688 7171 or emmie.fulton@coventry.ac.uk.

You can find out more about these developments by visiting this longer post from Emmie: Dr Emmie Fulton Asks – Dementia: Time to Inspire and Instil Some Hope?

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Dr Emmie Fulton Asks – Dementia: Time to Inspire and Instil Some Hope?

Tags

  • Alzheimer's Disease
  • Call to arms
  • Dementia
  • Dementia Diagnosis
  • DementiaChallengers
  • Have you had a dementia diagnosis?
  • Information for people with dementia
  • Website Design

One of the goals of the current ‘Coventry and Warwickshire Living well with dementia’, which campaign launched in October 2012, is to raise awareness and reduce stigma about dementia.

We all have different levels of knowledge about what dementia is and it means different things to each of us. People living with dementia are sometimes thought as those requiring high-levels of formal care, struggling to remember where they are, to recognise those around them and to engage in their own life or their future. In fact, this common perception fails to recognise that many people with dementia, especially those in the earlier stages, may still be working, doing voluntary work, starting new activities, learning new skills, actively engaging in the community and learning new ways to manage their illness.

‘’I believe that an important reason patients go downhill the way they usually do is because society sends them a devastating message that their lives are already over.’  – Morris Friedell: Dementia Advocacy and Support Network International (DASNI).

My name is Dr Emmie Fulton, I am a Health Psychologist and I work for Coventry University and Public Health NHS Warwickshire. I Recently began working on projects to support people following a diagnosis of dementia. I soon realised how little I knew. Like many people, the image I had of a person with dementia was really that of someone in the late stages of the illness, and I had no idea about the very different ways that the illness can affect people. What struck me more than anything else was the fact that the majority of support and information available is aimed at carers and those supporting people with dementia. Although I recognised the great importance of this, I couldn’t help but wonder why there was so little written and provided for a person with dementia themselves. This only seemed to reinforce the mistake that society can make that a person with dementia is no longer able to be actively involved in their health, their future, their life.

If the expectation is that you will not be able to learn new hobbies, do things for yourself, and take control of your own health, is it any wonder that some people with dementia feel hopeless and become depressed and withdrawn? The purpose of ‘Coventry and Warwickshire’s Living Well with Dementia’ campaign is to challenge these views and to promote the message that with help and support, people can live well with dementia. As part of this campaign, an information portal for dementia has been developed that aims to provide comprehensive information to people with dementia, their carers and the wider public about dementia. Linked to this we plan on developing additional web-pages written especially for people with dementia in the early stages and we are interested in hearing your thoughts about this.Recent Government reports tell us that they are committed to ensuring people receive a diagnosis of dementia as early as possible. This enables people to access information and support in a timely manner. The aim of the additional web-pages is to provide a positive message about what people can do for their physical and mental well-being, to help them to live well with dementia.

“We need to focus on ….. daring to try to recover skills, develop new talents, and create a new future invested with meaning and hope”. – Christine Bryden, in her book: ‘Dancing with Dementia’

We need your help to develop the webpages and are asking for your ideas about what would be useful content for the web-pages. It could contain practical tips and strategies to help people to remain independent, cope with stress and low mood, engage with others socially or learn new skills.

“You can’t stop the waves, but you can learn to surf”  – Jon Kabat-Zinn, 2004

Information about what dementia is and sign-posting to local services and support is well provided for by the Alzheimer’s Society and the new Coventry and Warwickshire Living Well with Dementia Portal. Therefore, the webpages will not focus on this specifically; however it will link to these sources. We realise that many people with dementia do not use the internet and may prefer not to receive support in this way. However we are aiming to provide people with a range of options in terms of how they access information and hope that as society ages, those receiving a diagnosis will be more familiar with the internet, and therefore this method of support will become more and more relevant to people. We welcome all ideas and thoughts. The most important thing for us is that it will provide something hopeful and useful to people living with dementia.

Please help us to develop the webpages by completing this short online questionnaire. Simply click on the link below and you can complete the questions:

http://www.surveymonkey.com/s/145dementia897

We will use this important information to help us to develop the content and tools offered. All ideas and comments will remain anonymous and confidential.

Thank you for your help. If you have any questions, please contact Dr Emmie Fulton (Project lead) on 02476 887171 or emmie.fulton@coventry.ac.uk

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Coventry and Warwickshire Living Well with Dementia Partnership Portal gets off to a great start

Tags

  • Coventry
  • Dementia Portal Launch
  • DementiaPortalCW
  • Health Care. Warwickshire
  • Living Well with Dementia
  • Social Care
  • Write-up

It’s been a hectic few weeks since we launched the Coventry and Warwickshire Living Well with Dementia Portal, which is one of the reasons for the delay in sharing some of the pictures and memories from the event.

First-things-first and in case you have missed it, you can find the links to different areas of our new website below:

The Launch event took place throughout the day on Thursday 25th October in the Council Chamber and ante chamber at Shire Hall, Warwick.

In the morning, invited guests attended networking and formal presentations on the website and partnership. We were very impressed to see such a great turn-out, with over 50 people attending the formal launch presentation, and would like to sincerely thank everyone who attended. There was a pleasing buzz to proceedings throughout the day and some brilliant follow-up feedback suggesting that those present found it a useful morning. We certainly did!

There were several presentations:

Cllr Jose Compton, Dementia Champion for Warwickshire County Council, and Cllr Ann Lucas, Health and Wellbeing portfolio holder at Coventry City Council who spoke on the issues of dementia across Coventry and Warwickshire and who celebrated the good working arrangements between the two authorities in providing joined-up information, advice and services across both counties:

Chris Lewington, Head of Strategic Commissioning at Warwickshire County Council, who spoke about the Dementia Strategy and the high-level of partnership working and user engagement that had led to the creation of the portal. Chris also explained that the portal is a living site that would be added-to and developed over time:

I gave a brief run through of the website and social media applications and how the content had been arrived at, answering a few questions from the audience along the way:

Finally, Tony Robinson, Warwickshire County Council’s Transformation assembly ambassador, how previously cared for someone with dementia and is a volunteer for the Alzheimer’s society gave an eloquent speech on the problems he faced in accessing the right information at the right time when he cared  forsomeone with dementia. Tony hopes that the website will be able to alleviate some of those issues for people in the future:

Those of you familiar with this blog will recall Tony has already had a guest post on here talking about the Alzheimer’s Society Early Diagnosis Pilot. Since writing that post, we are pleased to say, Tony has been selected by the Society to be the face of their Christmas Media Campaign.

Following the presentations and question and answer session, there were further networking opportunities and chances to look at the stalls in the ante chamber from a variety of providers and services such as books on prescription and the Alzheimer’s society.

As morning gave way to afternoon, Katie and I were kept busy with a steady stream of people who had come to take a look at the portal and collect some of the dementia awareness material during the advertised drop-in sessions, which kept us busy for the remainder of the day.

On behalf of the Partnership, we would like to extend kind thanks to everyone who attended on the day and made it the lively, useful and informative event that it was.

What other people have said

Throughout the launch event and since, we have had some great feedback from Twitter in relation to the portal. Here are some highlights:

Read this Tweet on Twitter

Read this Tweet on Twitter

Read this conversation on Twitter

You can also watch the Warwickshire 60 second news edition that was dedicated to the Portal Launch: Dementia Partnership lend a helping hand to people with dementia:

[youtube http://www.youtube.com/watch?v=wi7Lr6ib0hQ&w=560&h=315]

So, What’s next?

We will continue to review and improve the Partnership website, building on the fantastic networks that this event helped reinforce. We will also be distributing our dementia awareness material to sites across Coventry and Warwickshire and will continue to engage key partners to ensure that people are signposted to the portal at an appropriate point in their journey with dementia.

Want to show your support for the Partnership?

It would be great to see as many people as possible wearing our lovely dementia awareness wristbands. If you live and Coventry or Warwickshire and would like one of your very own, drop us an email with your name and address and we’ll send you one out in the post: promotionsandpublication@warwickshire.gov.uk

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Introducing: The Warwickshire Service Directory

Tags

  • Providers
  • Service Directory
  • Social Care
  • Warwickshire

The Warwickshire Service Directory is a web based Directory available for anyone to use who is looking for information about local organisations, groups and agencies that provide activities, advice, services and support to residents of Warwickshire.

Homepage of the Warwickshire Directory

Furthermore, the Events Calendar enables you to see what’s going in your local area and where appropriate you can search on specific organisations to see their events/activities solely.

In addition to looking for services, this is also a great opportunity for organisations providing services to showcase their services completely free of charge.  So if you want to register with the Directory, you can use the link below

Register with the Warwickshire Directory of Services

As most things change and evolve, so is the Warwickshire Service Directory – Following consultation, we are moving to a more picture-based look-and-feel to the site, making it more user friendly and including links to Online Self Support.

If you want to explore the Directory and find out more, you can access via the Social Care pages on the Warwickshire County Council website or on the link below: 

Explore the Warwickshire Directory of Services

We are especially keen to seen Providers offering dementia-related and dementia-friendly services, activities and support sign-up with the Directory so get in touch now.

 

 

 

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